MISSION, VISIONS AND OVERVIEW
​Partners For Krabbe Research (P4KR) is a 501(c)3 foundation. The mission is to increase awareness and to support research to improve the lives of those born with Krabbe disease.
Partners For Krabbe Research is dedicated to engaging with researchers, clinicians, families, other foundations associated with Krabbe and other Leukodystrophies, to support the need for an effective treatment for patients affected by Krabbe disease. By supporting research through fundraising opportunities, P4KR will donate funds to researchers, with the hope of wiping out the devastating symptoms of Krabbe disease.
Through all forms of social media, internet communications and other networking relationships, P4KR will create and develop opportunities to educate and create awareness about Krabbe disease. By establishing a network to service the Krabbe community, P4KR will utilize every resource available not only to find support for patients, but to also ease the pain and suffering that Krabbe disease brings to children and families affected with this disease.
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To ultimately find a cure for Krabbe disease.
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Partners For Krabbe Research (P4KR) is a volunteer foundation. No salary or compensation is paid to board members and/or committee volunteers for their contribution to the foundation. The majority of funds raised are given to research to improve the lives of those born with Krabbe disease.
Partners For Krabbe disease has been a member of Krabbe Translational Research Network (KTRN) for 8 years. For more information about the KTRN and the work they do, please visit:
...because we're in this together
Our Vision
