PO BOX 2313

Palm Harbor, Florida 34682-2313

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Copyright © 2023 Partners For Krabbes Research


Upcoming and Past Events

Upcoming Events/Fundraisers

Leaves of Hope Fundraiser

Hosted by:

Partners For Krabbe Research 


Anne Rugari

                                      WHEN:    November 16, 2019
                   TIME OF EVENT:     7PM-10PM


                       TICKET PRICE    $45


                                 WHERE:      Meritage Restaurant

                                      Cincinnati, Ohio 

  • Includes heavy appetizers

  • Two (2) drink tickets

  • Music by KayDee

To purchase tickets, click the link (coming soon)

For more information contact: P4KR.Anne@gmail.com

Funds raised will be used for research for Krabbe disease

Click Here to Purchase Tickets

Proceeds from sales of the book, Just Like Me! are used for funding programs that Partners For Krabbe Research supports.

Just like me.jpg

Just Like Me! was written to help all children understand that boys and girls with any rare disease are just like them. They may look or act different, but inside they are just kids, like them. Hopefully the book will help encourage understanding of all children who are differently-abled. Such an important life lesson!

The little girl in this book was inspired by Gina Rugari. Gina was diagnosed with Krabbe disease, a leukodystrophy, just weeks after she was born. Her journey to high school was filled with joy, laughter, tears, struggles and so many accomplishments. She loved crazy painted finger nails, Girl Scouts, and watching American Idol. She made art, played soccer, and was great on the computer. Even though she continued to lose muscle control and finger dexterity during her life she became a wonderful teacher. She was a lesson in love, bravery, and persistence for so many classmates, teammates, friends and adults.

Gina's smile could light up a room. Please use the story in this book to give your smile away to someone who may be different in some way, but is Just Like You!


2014 P4KR Derby Day Gala

Saturday, May 3, 2014

Past Events/Fundraisers

2017 P4KR Derby Day Gala

Saturday, May 6, 2017

2016 P4KR Derby Day Gala

Saturday, May 7, 2016

Buffalo Wild Wings Fundraiser

Wednesday, Jan 14, 2015

2015 P4KR Derby Day Gala

Saturday, May 2, 2015

2nd Annual Winter Fundraising

Wednesday, Jan 14, 2014

 2018 P4KR Masquerade Gala, Saturday, November 10, 2018

Cincinnati, Ohio

Events/Fundraisers Galleries

Masquerade Gala 2018.jpg