Demographic Study...

Demographic Study

P4KR is collecting information on Krabbe affected patients in order to have an accurate account of how many people are affected by Krabbe Disease all over the world.   The information will help with advocating for therapy development, recruitment of clinical trials and will be used to support research to develop new treatments.   The demographic study will be a support tool to improve the quality of lives for all who have encountered Krabbe Disease.

Dear Participant,

 

If you have not already contributed data or your information has changed (i.e. mailing address, email address, etc.), please consider participating or updating your information.  This study is a worldwide study for Krabbe Disease.

 

Thank you for submitting your information.  The data will be used to improve the outcome of those affected by Krabbe Disease.