had a ver big loss

MY SON  AYAAN WAS BORN ON  THE 28TH DECEMBER 2006....  IT WAS THE PERFECT PREGNANCY. HE WAS THE PERFECT BABY WE DREAMED OF... EVERYTHING  WAS GOOD UNTILL 4 MONTHS. AYAAN  HIGH MUSCLE TONE VOMITTING. CRYING  WENT ON FOR LONG PERIOD, HE WOULD ONLY GO TO MUM,, I HAD  TO S IT WITH HIM AT NIGHT AND SLEEP.I DIDNT KNOW WHAT HAS HAPPENING TO MY POOR BABY I WANTED THINGS TO GO  RIGHT,  BUT  GOD MAKES HIS CHOICES BEFOR WE DO.. MY SON WAS DIOGNED WITH KRABBES AT 7 MONTHS.  DOCTORS SAID  ITS TOO LATE FOR HIM TO GO THROUGH A TRANSPLANT.... I NEVER GAVE UP, I SEARCHED  THE NET DAY AND NIGHT THINKING THERE WILL BE CURE I STILL HAD HOPES..     MY SON HAD VERY BAD REFLUX I CHANGED HIS WHOLE DIET, GAVE HIM MILK FREE  FOOD  GAVE  HIM ALL THE GOOD VEGTABLES LETILS QUNOWA, ISTEAD SUGER I USED MAPLE SYRUP.. AYAAN LOVED AVOCADO.. IT ALL WORKED HIS REFUX HAD GONE ... DOCTORS WERE AMAZAD.. ITS ALOT OF EFFORT BUT ITS WORTH IT.AYAAAN WAS DOING VERY GOOD AT 2 YEARS,  BUT HIS  MILK INTAKE WAS VERY LOW  DIETICAIN THOGHT OF THE NG TUBE, I REFUSED AT FIRST BUT  WHEN I THOGHT HE WILL GAIN WEIGHT I AGREED.. MY SON  DIDNT GO THROGHT NO MAJOR CHEST INFECTION, HE USED HAVE A FLU   NEARLY EVERY THREE MONTHS, THAT MEANS  MY SONS HAD A  LOT OF ANTIBIOTICS. AYAAN COULDNT KEEP THE NG TUBE FOR  LONG,  SPEACH AND LANGUAGE THEREIPST DECIDED HE NEEDS A PEG,, I SAID NO, MY SONS NOT HAVE THAT ITS GONA BE THE END OF HIM.. BUT HE HAD TO HAVE IT.HE WAS OKAY WITH THE PEG  HE NEVER COMPLAINED, HE WAS AN ANGEL FROM PARADISE ON THEIS EARTH VERY UNIQUE FROM  HIS COUSINS.ON THE 18TH ON DECEMBER MY SON LOOKED VERY WEAK,  HE HAS VERY HIGH TEMP,A BAD COUGH, HIS BREATHING  SEMED SLOW, I CALLED  THE  SURGRY, HIS DOCTOR CAME , SHE SAID ITS NOTHING HIS GOT A CROUP BUG, SHE WAS WRONG AT NIGHT HE  SEEMED WORSE WE TOOK HIM THE AE, THE PEADIACTICS  QUICKLY TOOK HIM TO THE RESESITATION ROOM, XRAYS  BLOOS TEST  EVERYTHING HAPPENED SO QICKLY,HAS WAS ADMITTED IN THE  INTENSIVE CARE UNIT WITH   CHEST INFECTION. MY ANGEL GOT BETTER IN TWO DAY WE THEN MOVED TO THE  NORMAL WARD WHICH MADE ME FEEL AT EASE.  THAT WAS JUST FOR ALITTLE WHILE.. AYAAN S OYGEN LEVEL WS NOT RIGHT , HIS GAS LEVEL WAS NOT RIGHT HIS FEVER  WENT HIGH, MY SON LOOKED VERY ILL.HE WAS  MOVED BACK TO THE INENSIVE CARE UNIT.. DOCTORS SAID  WE NEED TO DO MORE TEST ON YOUR SON, MY POOR BABY HAD DRIPS  OXYGEN ON HIS FACE, EVERTHING WAS COVERERD EXCEPT HIS EYES, MY SON NEVER COMPLAINED HE DIDNT EVEN CRY.. HE WAS A SOLDEIR.ON SAT 26TH DECEMBER  AT 6AM IN THE MORNING DOCTORS CAME TO ME TO TELL  ME MY SONS NOT GONA SURVIVE HE IS DYING... I TOO MY BABY IN HAND AND TRY TO MAKE HIM COMFORTABLE. MY MUM WAS THERE MY HUSBAND AT MY SIDE MY  MOTHER INLAW AT THE OTHER SIDE... MY SONS BREATHING WAS SO HEAVEY HE WAS WORKING VERY HARD I COULDNT TAKE IT NO MORE,I WANTED EVERYTHING TO  BE RIGHT NEVER DID I THINK HE WOULD DIE.. BUT HE DID MY SON DIED IN MY ARMS.. I KEPT TELLING MY  HUSBANT YOU TOLD ME WILL  TAKE HIM HOME HE HAD NO WORD  BUT JUST TO COMFORT ME.. MY ANGEL IS RESTING IN PEACE.. WE MISS HIM ALOT.. HIS LEFT A DEEP SCAR IN OUR HEART THAT WILL NEVER HEAL.

LOVE RUBINA

Dear Rubina,

I am so sorry to read about your loss. As Bijay says, Ayaan was a true fighter, all our children are.

I'm pleased that you found the message board & hope that you will feel that you can join in the discussions here. You will always be very welcome.

Love from England.

Ken. XX

HI Rubina, so sorry to hear about your little boy, but glad you have found your way here.  Ayaan was definately a fighter, much likE my boy Jack.  Jack was diagnosed at 7 months and passed away in April 2008 at 21 months old.

I understand the loss and emptiness, i miss Jack everyday but it is true, time does help and somehow you get through it. 

Do you have anymore children?

Melanie

Rubina and family,

I am so sorry to read about Ayaan's passing.  Please know that you and your family are in my prayers.

Love,

Denise (Lucas' Neecie)

ITS BEEN  2 MONTHS 1 WEEK SINCE AYAANS GONE.IV HEARD ALOT OF MUMS SAYING TIME IS A GOOD HEALER, I GUESS NOT WITH ME. THANKS FOR YOUR CODOLENCES EVERYONE,I AM TRYING FOR ANOTHER BABY, BUT IM SCARED AT THE SAME TIME.I EMAILED  DR JOANNE KURTSBRG, SHES GIVEN ME THREE OPTIONS. PGD, CVS, CORD TRANSPLANT, OR HAVING THE TRANSPLANT WHEN  YOUR BABIES IN THE WOMB WITHOUT CHEMOTHERAPHY.LETS C  WHAT HAPPENS,  I HAVE MADE MY DECISION THAT IF MY BABY HAS KRABBES I WOULD NOT OBORT IT, I WOULD THINK GOD CHOOSE ME AGAIN TO HAVE A CHILD LIKE AYAAN BUT WITH A CURE HOPEFULLY. I MISSS MY ANGEL SOOO SOOOOMUCH.

LOVE RUBINA